"This is Who I am and That's How it's Gonna Be”
An interview with my friend Sydney
My friend Sydney always has something
helpful to say when I most need to hear it. Sydney and I met as coworkers at a pediatric
clinic. The more time I spent with her,
the more I learned about her courage and positivity. Sydney is athletic, courageous, funny, and
charming. She is a great movie buddy—we
love watching movies like Wonder Woman and Star Wars
together. Sydney is also very open about
her experiences growing up with and living with an intellectual
disability. The other day, I invited her
to share some tea and popcorn at my place so she could tell her story.
We started by talking about sports. Sydney has done track, basketball, horseback
riding, swimming, and skiing. Her favorite
sport is horesback riding: "I love horses, because I've been around them
since I was in second grade." In
fact, she still volunteers at the horse stable where she learned to ride. Her eyes lit up as she talked about working
with the horses. "I actually help
bring horses in, or feed them, and dump out the dirty water and put in clean
water. And I get them groomed and
saddled and brideled and just love on the horses."
Then we dove into her experiences competing as a
swimmer in the Special Olympics. I
expected her to emphasize the pressures of such a prestigious competition, but
instead, she focused on the experience of swimming itself. "Swimming is a really good sport,"
she said. "It helps your cardio and
moving your arms, and going backwards with your arms." She started to demonstrate how to do the
backstroke right there on my couch, and we laughed as her arms bumped against
the pillows. Backstroke is her favorite
stroke. And she can even do the
butterfly stroke, one I find extremely difficult. I asked her how she learned those difficult
swimming strokes. "I just pay
attention," she replied.
Sydney loves to learn new sports. Recently, she recounted, "I actually had
my new experience skiing in the woods."
While on vacation each year, she skis with Steamboat Adaptive
Recreational Sports (STARS). Sydney had
lots of positive things to say about STARS:
"great organization, they help you with how you need to do your
pole plants and how to ski moguls and how to ski woods and everything. The woods was really really fun. It can get dangerous if you don't know what
you're doing." A mischievous grin
played across her face.
Sydney's casual air of confidence is not
boastful; when she talks about herself, she is quite humble. When I asked if she had any challenges at the
Special Olympics, she paused. "Not
really." She shrugged. "I just say, 'I can do this,' and I have
confidence that I can do it." How
does she feel such confidence? "The
Holy Spirit," she explained.
"The Holy Spirit guides me on that path, and God will lead you to
that point."
Even though learning isn't always easy for
Sydney, she perseveres and triumphs.
When I asked her about a challenge she had to work hard to overcome, she
described learning to make her bed after washing the sheets. "My mom she actually taught me how to do
all of it and I did it all by myself. I
just take it step by step." She also
shared a bit about her experiences with her intellectual disability. "Well, what's easy is I know my reading
skills and I know how to spell words and everything, so my strongsuit is
English. But math is my weakness. So I have a hard time with numbers and having
to count up money and everything like that.
And that's why I have an intellectual disability."
When she was young, she did speech therapy,
occupational therapy, and physical therapy.
Most recently, she had to return to physical therapy after hurting her
ankle while horseback riding. During our
talk, she demonstrated some of her physical therapy exercises, which she still
does every day, even though she healed from that injury long ago. My favorite one to watch was the ABCs, where
she spelled out the alphabet by moving her foot. "It [therapy] helped me a lot; I mean I
wouldn't been bike riding or I would've not been rollerblading if I did not do
those things." Her advice to anyone
who needs to do therapy to work on their skills is this: "be patient with that person, because you
never know what can go wrong and what they have going on in their lives. Everybody's different." She then described a time she had to be
patient with herself and her therapist:
"Well, I had to be patient with speech therapy, because… it took me a while to process what she was asking me. So I had to think about it before I had it out
there." Then she talked about her
therapy activities. "Reading was a
little bit harder, but when I got into it and everything I developed that I
loved reading." When it comes to
learning a new skill, motivation is key for Sydney. "When you're working so hard and you
really want to get it, just put your mind to it. Think about what you want to do with it, and
go with it."
Sydney is a voracious reader. Every time I talk to her she is reading a new
book. A few weeks ago, she was reading The
Godfather, by Mario Puzo. She's
already finished it and is reading the sequel.
"The Godfather was a very very long book that I
achieved! And now I'm reading The
Godfather Returns." She highly
recommends both the books and the movies.
Something else I admire about Sydney is her
kindness. Even when people are being
difficult, she responds with grace. Her
strategy for dealing with conflict is simple and direct: "Don't criticize yourself. Think about it as, be yourself." She said it is important to ask the other
person how you can change. Then, "I
would be like, 'Hey, I'm sorry that I said that. I can be better about rewording it.'"
Sydney is a master communicator. In fact, even when I was asking her about
sports, she talked about how sports can connect people. And she has good reason to think that
way—after all, she met her lifelong partner at the Special
Olympics! Even books and movies are an
opportunity to connect with people. On
vacations, she chats with her partner’s family about their favorite
books and movies. As she falls asleep,
she prays by telling God about the books and movies she was thinking about that
day.
Sydney is also active in her Bible Study at
church. For Sydney, the best thing about
Bible Study is, "You're really connected with God. You're basically in Spirit…. Singing is like basically you're
in worship…. God is directing you to do it." When I asked about her favorite songs, she
was quick to point out that she has to limit listening to Christian music,
because often it makes her cry. She is
very emotionally connected with God. No
wonder she is so kind and patient with everyone.
I hope Sydney can be a role model for others,
both with and without disabilities. Her
advice for people with intellectual disabilities is "Don't be shy. I mean, don't hesitate or anything. Just think about it and then say
it." She also advised me to
"Put a smile on! Be more outgoing
or something. Like, go have tea with
somebody at Starbucks or something."
She knows how much I love tea.
I shared with Sydney that sometimes I struggle
with self confidence. Sydney had some
sage words. "You need to tell
yourself: I am who I am and this is who
I am and that's how it's gonna be."
She gave me a knowing smile.
"God does not want you to worry.
God just wants you to live your life and try to be as positive as
possible." She described her
morning routine. "So when you get
up for work or something like that, if you look in the mirror and you see
something [negative], you just say, 'it's a new day. Nothing's gonna bother me.'" She talked about the positive effects of
being outdoors, and about the importance of confidently meeting new
people. "Go out there and just
share the world and be like, 'Hey, this is who I am.'"
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